Dementia/Memory Problems
Dementia
Dementia is a syndrome associated with an ongoing decline in brain functioning. Early-stage symptoms include memory loss, problems with thinking, poor orientation, changes in mood or emotion, visual-perceptual difficulties, and problems with language/communication.
Many conditions cause dementia, including Alzheimer’s disease and vascular dementia.
Many people in the early stage of dementia stay largely independent and only require a small amount of assistance with daily living. It is important to focus on what the person can do by themselves and seek assistance if needed.
Early diagnosis of dementia can be very important as it can provide the opportunity for future care and treatment. It allows people to plan while they are still able to make important decisions on their care and support needs and financial and legal matters. It also helps them and their families to receive practical information, advice, and guidance as they face new challenges.
The Very Brief Intervention section below is targeted toward improving early diagnoses and treatment. This section also includes a section on dementia risk reduction.
Very Brief Intervention
Ask
How would you describe your memory at the moment?
Have you forgotten anything related to your normal day to day activities?
- We all forget things from time to time but has this increased
How would you describe your ability to concentrate on daily or regular tasks?
How would you describe your ability to find the right words in your daily conversations?
Have you ever got lost in an area you know well?
Can you remember events clearly from years ago but sometimes not remember who you saw this morning?
Are there times where you have misplaced items that then turn up in strange places?
Can I ask you some questions about the person?
Have you noticed changes in your loved one's behaviour or personality?
Is your loved one asking the same question repeatedly or telling you the same thing over and over again?
Do you often find they have misplaced items that then turn up in strange places , i.e. your purse in the fridge or glasses in the microwave?
Are they unsure about typical tasks such as making a cup of tea? Getting dressed?
Do you often find that they can remember events clearly from years ago but can't remember who they saw this morning?
Assist
If the person is worried about their memory, or think they may have dementia, state that it's a good idea to see a GP.
- Reassure the person that getting a diagnosis gives you and your family the best chance to prepare for the future
If you are worried about the person
If you're worried about someone else's memory problems, encourage them to make an appointment with a GP and perhaps suggest that you go with them.
There here are lots of organisations who can help with support and advice, would you like some further information on this?
Act
National Support Services
Dementia Connect
Dementia Connect, Alzheimer's Society's dementia support service, is free, easy to access, and puts you in touch with the right support. From local help to phone and online advice.
Alzheimer’s Society’s dementia advisers can support you directly by phone or face to face, as well as connect you to a range of local services.
Web: Dementia Connect for healthcare professionals | Alzheimer's Society (alzheimers.org.uk)
The NHS
It's normal for your memory to be affected by stress, tiredness, certain illnesses and medicines. But if you're becoming increasingly forgetful, particularly if you're over the age of 65, it's a good idea to talk to a GP about the early signs of dementia. Memory loss can be annoying if it happens occasionally, but if it's affecting your daily life, or it's worrying you, or someone you know, you should get help from a GP.
Web: https://www.nhs.uk/conditions/dementia/diagnosis/
The Alzheimer's Society
Alzheimer’s Society is the UK’s leading dementia charity. We campaign for change, fund research to find a cure and support people living with dementia today.
Web: https://www.alzheimers.org.uk/
The dementia guide: Living well after your diagnosis
Caring for a person with dementia: A practical guide
Tel: Dementia Connect Support Line: 0333 150 3456
Other Key links
Dementia UK - Dementia Helpline (support from dementia specialist admiral nurses): 0800 888 6678
Tide - Together In Dementia Everyday: Telephone: 0151 237 2669 Email: carers@tidecarers.org.uk
Carers UK- Making life better for carers: Telephone: 0808 808 7777 Email: advice@carersuk.org
Self Care
We can’t change our age or our genes, and there is currently no way we can completely prevent dementia. However, there are some simple steps we can all take to help lower our risk.
Risk factors for cardiovascular disease (like high blood pressure and stroke) are also risk factors for dementia, so what is good for your heart is good for your brain. Looking after your health, cutting out smoking and being physically active on a regular basis will help lower your risk of cardiovascular disease. It’s likely you’ll be lowering your risk of dementia too, particularly vascular dementia and Alzheimer’s disease.
For good heart health:
- don’t smoke
- keep cholesterol and blood pressure under control
- be active and exercise regularly
- maintain a healthy weight
- eat a healthy balanced diet
- drink fewer than 14 units of alcohol per week.
Web: https://www.alzheimersresearchuk.org/dementia-information/reducing-the-risk/
Herbert Protocol
The Herbert Protocol is a national scheme that encourages carers, family and friends to provide and put together useful information, which can then be used in the event of a vulnerable person going missing.
Carers and / or relatives and friends can complete a form in advance, including important information about the missing individual such as the contact numbers, medication needed, locations the person was last seen and so forth also a photograph can be provided.
Click here for more information for residents in Bedfordshire
Local Support and Contact Details
Dementia and Alzheimer's link to services - Bedford Borough Council
You can get dementia support services in Bedford Borough through Carers in Bedfordshire and Tibbs Dementia Foundation.
Memory in Beds has a list of local services in Bedford Borough.
Have a read of the guides and information about living with Dementia and the practical things you or your loved ones can do to live a Dementia-friendly life.
Website: Dementia and Alzheimer's · Bedford Borough Council
Tibbs Dementia Foundation
Our community, a Registered Charity, is dedicated to providing a range of accessible and flexible groups. Our aim is to offer a wide range of activities which provide cognitive and physical stimulation in a safe and supportive space. Our groups are for people in all stages of dementia, diagnosed or not, and those who support them.
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for people with dementia and their family carers
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to attend both separately and together
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to support cognitive, physical, emotional and overall wellbeing
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throughout the whole of peoples’ dementia journeys
Email: Tibbs Dementia – Tibbs helps me be myself for as long as possible
Telephone: 01234 210993
Memory in Bedfordshire - support for Carers
We support those caring for someone with dementia or memory loss or if you are concerned about your own memory. We offer help, advice, information, support groups, a befriending service and a listener ear.
Website: https://memoryinbeds.org.uk/
Telephone: 0300 111 1919
Email: contact@carersinbeds.org.uk
Tibbs Dementia
At Tibbs Dementia Foundation, they provide services designed to support both individuals with dementia and their family carers. From pre-diagnosis to end-stage dementia, our approach is holistic, aiming to enhance cognitive, physical, and emotional wellbeing. Tibbs services include Music Therapy, Cognitive Stimulation, physical activities, information and Peer Support.
Website: Tibbs Dementia – Tibbs helps me be myself for as long as possible
Telephone: 01234 210993
Email: contact@tibbsdementia.co.uk
Dementia Connect Essex - Community Dementia Support Service
Dementia Connect is a free, personalised support and advice service for anyone living in the Essex County Council area who is affected by dementia. It puts you in touch with Alzheimer's Society's expert dementia advisers who will listen, help with all your dementia-related questions, and connect you to the support you need.
The service is for people with dementia, their carers and families, and professionals in health and social care.
Tel: 0333 150 3456 (calls are charged at standard local rate)
Monday - Wednesday: 9am - 8pm
Thursday - Friday: 9am - 5pm
Saturday - Sunday: 10am - 4pm
Email: dementia.connect@alzheimers.org.uk
Hertswise
Delivered by a partnership of nine local charities and social enterprises, Hertswise offers community dementia support to people of all ages throughout Hertfordshire, through a variety of different services.
For more information about our dementia support services, please call our first point of contact, Herts Help:
Tel: 0300 123 4044
Email: info@hertshelp.net
Text: 60060
Monday, Tuesday, Thursday and Friday, 9am – 5pm
Wednesday, 9am – 7pm
Saturday – Sunday, 10am – 4pm.
Age UK Hertfordshire
Supporting older people by delivering services that help make later life a fulfilling and enjoyable experience
Web:https://www.ageuk.org.uk/hertfordshire
Age UK Hertfordshire
At Alzheimer's Society, we believe passionately that life doesn't end when dementia begins. We are here for anyone affected by dementia, and we do everything we can to keep people with dementia connected to their lives and the people who matter most.
Alzheimer's Society Luton
If you’re affected by Dementia and live in Luton you’re not alone. Our specialist services will help you:
- get tailored information and advice from our experienced staff
- keep your independence and improve your wellbeing
- feel confident and supported
Website: https://www.alzheimers.org.uk/
Contact the Luton team on 01582 470910 or email bedfordshireandluton@alzheimers.org.uk.
Alzheimer's Society Dementia Cafe
The Alzheimer’s Society Dementia Café at Hope Church aims to provide people with Dementia and their carers with a safe, comfortable and supportive environment to socialise in and to gain practical information and support. The group enjoy talks from Health Professionals, music performances and arts and crafts
For more information or to attend contact Louise Buckingham at the Alzheimer’s Society Luton office on 01582 470910 or email her on louise.buckingham@alzheiemers.org.uk
Total Wellbeing Luton - Neurological Support Programme
Total Wellbeing's programme involves encouraging activity to people suffering with a neurological condition such as MS, Parkinson’s and also includes people who have been diagnosed with Dementia and Alzheimer’s. The sessions are designed to engage participants with activity whether it be on a 1:1 basis or a group session. Total Wellbeing Luton offers a wide range of different classes such as chair based, walking groups, Tai Chi or even swimming classes.
All participants will receive a voucher for 10 sessions at £2.50 each and an initial assessment with a specialist. The carer can also take part in the programme at a heavily discounted rate.
Tel: 0300 555 4152
Email: info@totalwellbeingluton.org
Headway Luton
Headway Luton supports people with an Acquired Brain Injury (ABI) including dementia.
The Luton Day Centre activities include:
**Speech and communication **Physiotherapy**Cognitive Exercises **Physical Exercise/Yoga**Computer Classes**Singing/Music**Cooking **Mindfulness**Money Management **Arts & Crafts**Social Interaction**
Community support for clients, families & carers across Luton, Dunstable, Houghton Regis & surrounding areas includes:
**ABI Information & Advice **Crisis Intervention**Emotional Support**Signposting**Advocacy for housing, benefits & money issues **Additional support as required*
Website: www.headwayluton.com
Telephone: 01582 876729
Dementia and Alzheimer's link to services - Milton Keynes Council
You can get dementia support services in Milton Keynes through
- Milton Keynes Specialist Memory Service Dementia is a condition that can cause memory loss and other symptoms, if you are at all worried please visit your GP who may refer you to Milton Keynes Specialist Memory Service (CNWL) for further testing. If you receive a positive diagnosis you, and your family or carer will be invited to a post-diagnostic information session and courses run by the Specialist Memory Service.
- Dementia Information Service (DIS) run by Alzheimer’s Society offers ongoing support and information. You will be asked if you would like DIS to contact you by the Specialist Memory Service or you can contact DIS yourself.
- Adult Social Care can offer information on choosing the right care and support for you and you may be eligible for services.
- Adult Social Care Admiral Nurse Service specialist service to provide support to families and carers in complex situations
- Musical and activity groups including Singing for the Brain sessions organised by the Alzheimer’s Society contact on 01908 232612 for further information. During Covid they are also hosting virtual activity sessions including quizzes and zoom meetings to support carers.
Have a read of the guides and information about living with Dementia and the practical things you or your loved ones can do to live a Dementia-friendly life.
Website: Dementia and Alzheimer's · Milton Keynes
Dementia Resources – Norfolk County Council
“The term dementia refers to a group of symptoms that may include memory loss and difficulties with planning, problem-solving or language.
What to do if you are worried about someone: See the recommended websites below to find out about diagnosis, help for people with dementia and their families or carers, and treatments which may lessen the symptoms.”
Website: https://www.norfolk.gov.uk/care-support-and-health/health-and-wellbeing/adults-health/dementia
Offer: Norfolk
Forget me Not Grant (to support people living with Dementia)
Several district councils offer Forget Me Not Grants to support those living with dementia. This can be up to £500 to assist people living with dementia to maintain a safe, decent and warm home, and to help reassure those who care for them and to promote independence and support people living with Dementia in the community.
Please contact your district council for more details.
Dementia adaptation grants – Norwich City Council
“These grants are available for anyone living in Norwich who has been diagnosed with dementia and is still living in their own home.
The scheme will provide a grant of up to £2,500 for minor adaptations designed to help the individual, and their carers, cope with the challenges of living with the condition. We will ask for a letter from your GP or specialist confirming that dementia has been diagnosed.”
Offer: Norwich
Dementia and Intensive Support Team (DIST) in Great Yarmouth and Waveney
“DIST in Great Yarmouth and Waveney is a team of health professionals experienced in assessments and interventions for adults with age-related needs. Whilst this is generally for people over 65 years of age this service is for anyone living with a diagnosis of dementia.”
Telephone 01502 527 530.
Age Space Suffolk
There are over 12,000 people living with dementia in Suffolk – a figure that is only expected to rise in the coming years as Suffolk welcomes more elderly into the county. With this in mind, Suffolk healthcare has an extensive range of dementia services in place to help those living with the disease.
Age Space has compiled all the Suffolk dementia services that are available in one place for you here.
Click on the links below to find out more information of the different services within Suffolk and the locality of their work.
- NHS Services for People with Dementia in Suffolk
- Local Dementia Charities Supporting People with Dementia in Suffolk
Here is a guide on Dementia Friendly Initiatives in Suffolk.
Suffolk Family Carers
Working together to ensure family carers are visible, valued, supported and connected.
For over 30 years Suffolk Family Carers have been helping family carers of all ages across Suffolk get the support they need to live fuller lives. We provided information, advice and support to thousands of family carers each year.
Our credible representation of family carers’ needs, and our valued work in supporting family carers, enables us to campaign on issues that affect them, to ensure their voices are heard. We will keep driving change across society to enable family carers to have a life of their own alongside their caring role.
What We Do
Caring can be extremely complicated. The maze of rights and entitlements can be complicated. Filling in paperwork can be complicated. Trying to organise a break can be complicated. Our feelings about caring can certainly be complicated.
We’re here to make sure that no matter how complicated your query or your experience, you don’t have to care alone.
99% of family carers felt that Suffolk Family Carers listened, and gave them information and advice to empower them to make informed decisions about their caring role.
We provide innovative services, often ahead of the field. Our work with young carers in now long established and well respected in over 90 schools and colleges across Suffolk. We have support workers in all the main hospitals across Suffolk, and GP surgeries in West & East Suffolk, to identify and support family carers. We introduced the ‘Carer Friendly Hospital’ award for hospitals, to recognise the needs of the family carer alongside the patient. Our work within the sphere of mental health and wellbeing is considered exemplary by family carers and practitioners alike. We also support family carers who are affected by someone else’s drug or alcohol use. We signpost to relevant agencies and provide positive opportunities to meet others in a similar situation, share viewpoints and discuss different strategies.
Contact:
Website: http://www.suffolkfamilycarers.org/
Telephone: 01473 835477
In person visits: Our Carers Space provides facilities for you to drop in and meet with our staff to simply chat and enjoy a coffee. Our offices are wheelchair accessible and parking is available.
Thurrock First (support for Dementia) offer a range of services to help people with dementia to live independently at home. These services include: personal care services, domestic help and day care services
Website: Help for people with dementia | Memory loss and dementia | Thurrock Council